Grandpa's Visit

While Grandpa was the first family member to see Dylan, he didn't think he should be the first family member to hold him. After work yesterday, Grandpa finally held Dylan and Dylan smiled at Grandpa. Dylan has Grandpa's toes, which I call flip flop toes because there is a big space between the two toes--perfect fit for wearing flip flops.

The NICU is kind of an interesting place where they test for everything and are super careful about everything. It kind of drives me nuts sometimes, but as long as they are getting Dylan all better and ready to come home, I guess I should not complain.

Update: Dylan gets really, really made when he is hungry and some of the nurses are so schedule based that they won't feed him any earlier than his scheduled feeding. His heart rate sky rockets when they make him wait and the alarms go off. But once he is full, he is such a happy camper. He is having a hard time taking the bottle, so they stuck a feeding tube in him again, which he hated. Who would like it though right? I was there when they put it in and he immediately pulled it out. Once they put some temporary tape on, he pushed his stomach (since the tube goes from his nose to his stomach) which made the tube pop out again. Did I mention that he hates it? I told him that if he starting eating better then he could get the tube out. So he loves food, but has a hard time eating. He breathes through his mouth, so he hasn't figured out how to breathe and eat at the same time. Yesterday, I was able to nurse him and he did fantastic. My guess is because he had control of flow, etc. If he gets this feeding thing down better, then they say he might come home on Friday, but that can change. The other big thing from yesterday was they ran tests on his kidneys because one looked bigger than the other and were concerned that was making some of his urine go in the wrong direction. The results came back and the flow is normal, so he shouldn't have any urinary tract infections like they thought he might. The other concern is that they might need to clip the bottom of his tongue so that he could eat better, but the doctors are debating whether it is necessary or not. We are still waiting on the results from his chromosome test to see if he has BWS (beckwith wiedemann syndrome), but won't get those for another week or so.

Today I get to go home, but as luck would have it, Blake is totally sick. I am sure grateful for my parents who are willing to watch him even though he is sick. We just need to get Blake healthy before Dylan is released.