Thursday, January 19, 2012

Clear

Because of BWS, Dylan is at high risk for cancer, which means an ultrasound every 3 months (along with a urine sample and blood work). I was told that Dylan needed to be fasting for 4 hours for the test and then when I scheduled the appointment I had them confirm this with the ultrasound technician because it seemed ridiculous and I was told that it actually needed to be 5 hours. Really? How do you get a baby to do that? I warned them that Dylan is really unhappy when he doesn't eat and he eats every 2 hours in the day, they assured me that they are used to fussy babies. I tried to convince them that he isn't fussy, he is mad. I figured that maybe this will help us get in and out of the doctor office if Dylan is screaming his head off, so maybe this would be fine. Alright, well, the best chance of this happening is in the morning, so we took the first appointment of the day at 8am. We get there and Dylan is mad so the technician asked why he was fussy to which I respond...um, because he hasn't eaten for awhile. Technician then tells me that there is no way a baby can go that long without food. I just about punched her in her face because well, I had been up since 4am trying to keep him happy without feeding him. Enough of my complaining...they found nothing in the ultrasound (other than a lot of gas) and now we know, he won't have to fast for another year or so. We go in next week for the blood work, but since they didn't see anything on the ultrasound, we should be clear until 3 months from now.
And speaking of being clear, well, this is Dylan's normal look when he hears Blake's voice. Dylan is making sure he is "clear" of Blake's attacks.
While Dylan is taking his morning nap, Blake likes to play outside and ride on his scooter, but then almost always will end up watering the plants (aka spraying). The other day he sprayed me and about 5 minutes after he sprayed me says, "Mom, your shirt is wet." and then he laughs.


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